Baltimore, MD---The Interactive Autism Network (IAN), built on mdlogix's Clinical Research Management System, is marking its one-year anniversary with more than 23,000 consented individuals, making the online initiative the world’s largest autism registry. IAN (www.ianproject.org) is an innovative project run by the Kennedy Krieger Institute and funded by Autism Speaks. It is designed to accelerate the pace of autism research by linking researchers and families. This dynamic exchange could lead to new discoveries about causes, diagnosis, treatments, and a possible cure. The registered numbers are increasing with the media coverage of the IAN project* that is occurring in April, Autism Awareness Month.
“mdlogix has created a software system that is specifically designed for collecting clinical research quality data via the internet, and we have experience in developing national registries using this technology,” said Allen Y. Tien, MD, MHS, mdlogix founder, president, and research director. “We have unique patient facing functions requiring a different set of technologies that no one else offers. It’s a distinguishing feature of our system.”
The mdlogix software system was designed from the ground up for ease-of-use from the patient (Web user) point of view, while providing scientifically rigorous data collection methods. Patients self-register, complete online consents, and build a family pedigree. They then complete the forms associated with the patient groups they are enrolled in. The system also allows for legal guardians to fill-out forms for those in their care. Built into the system are methods for entering and tracking treatments.
Investigators create data collection forms through a simple to understand and use, Web-based form building tool. Forms can be published to investigator specified “patient groups”, meaning individuals will only be asked to complete forms that are appropriate for them. Investigators can manage self-report forms throughout a study. Though first used by the autism community, the system can be easily reconfigured for any disease community wishing to build a national registry or to collect self-report data from disease sufferers.
*Some articles on the success of the IAN project, built on mdlogix software:
The Baltimore Sun: http://www.baltimoresun.com/news/local/bal-te.md.autism16mar16,0,6749178.story
Medical News Today: http://www.medicalnewstoday.com/articles/102397.php
Upcoming ACRP Conference
mdlogix will be an exhibitor (booth #318) at the Association of Clinical Research Professionals (ACRP) Global Conference and Exhibition in Boston, April 26-29. Attendees can visit the mdlogix booth to talk about their clinical research needs and to see highlights of our software system.
mdlogix is a rapidly growing company headquartered in Baltimore, Maryland. It is committed to accelerating clinical research by providing a portfolio of enterprise-level software products and services, focused on its market-leading, caBIG™ Bronze Certified Clinical Research Management System (CRMS). mdlogix has the proven ability to deliver flexible, configurable software products and professional services to world-leading research institutions and organizations. For more information, please visit our company Web site, www.mdlogix.com or call 410-828-8948.
About the Kennedy Krieger Institute
Internationally recognized for improving the lives of children and adolescents with disorders and injuries of the brain and spinal cord, the Kennedy Krieger Institute in Baltimore, MD serves more than 13,000 individuals each year through inpatient and outpatient clinics, home and community services and school-based programs. Kennedy Krieger provides a wide range of services for children with developmental concerns mild to severe, and is home to a team of investigators who are contributing to the understanding of how disorders develop while pioneering new interventions and earlier diagnosis. For more information on Kennedy Krieger Institute, visit www.kennedykrieger.org.